Here’s what Orla had to say: The iCAN summit this year was super fun and I think they have lived up to the fact that they try to improve the summit every year and I’m excited to see how it gets better in the years to come. At the summit, one thing I really enjoyed […]
The meeting on the 20th of May was very enjoyable and productive. We started off with catching up with each other and then we had a brief of what the meeting itinerary is. We officially began by answering questions such as what have u been up to since we last met; many answers to that […]
In today’s session we had some new members join us, they were welcomed, and we had some of the original members of the group tell them what we do at YPAG. We started off with Vijay asking us questions and familiarising ourselves with what research is and how it can be beneficial to people. We […]
On Saturday 24th September 2022, the eye YPAG met in person for the first time since the end of 2019. I love meeting in person so much more than on Zoom – although we do have to get up a lot earlier to travel to London! It’s worth it though! It was great to catch […]
We had the amazing opportunity to send our young people on a trip to the iCAN conference (International Children’s Advisory Network meeting) hosted in Lyon France. The network brings together and supports young person advisory groups around the world to provide a voice for children and families in medicine, research, and innovation. Below we have […]
Some of us and some of the children and young people from the GOSH YPAG have done training that was organised with Jacq to learn about how to interview other children and young people. They told us about their experience, and Jacq will run more training workshops in the summer or autumn. Jacq presented two […]
Hi my name is Walter and I was one of 6 YPAG members who took part in three evening training workshops on Qualitative Interview training in April and May 2022. Below is a Q&A where I tell you about our experiences. You can also listen to myself, Sarun, Niamh and Orla telling other YPAG members […]
On Saturday April 23 we met one more time on Zoom – we so hope that our next meeting will be face-to-face again! It was great to see each other on screen at least. We talked about what everyone had been doing over the Spring holidays. Then Dr Thomas gave an update on project Oriel, […]
Thank you Eleri, and for all your wonderful contributions to eyeYPAG over the past year – Merry Christmas!
On Saturday 25th September 2021, in our YPAG meeting, we spent some time trying to help Mr Larkin and his team share the results of their KERALINK trial in a way people would understand. The KERALINK trial tested the ‘cross-linking’ treatment for Kerataconus, to try and stop the deterioration of sight in young people with […]
