We know the impact young people’s involvement can have on the design and delivery of paediatric health research. But it is also important to listen to parent’s and carers views and opinions.
We want to involve parents and carers in learning about and designing health research. The aim is to improve health care by improving the way we research it.
In February 2018 Alder Hey Clinical Research Facility (CRF) in Liverpool set up a Parent and Carer Research Forum to support the design and delivery of clinical trials involving children and adolescents suffering with chronic and long-term conditions. Parents and carers were invited to be part of a forum to support a variety of studies being undertaken within Alder Hey CRF and across the UK and Europe.
The Forum will work alongside researchers to improve resources and play an integral role in the development of a wide range of paediatric studies. The roles will include:
Members of the forum will receive relevant training to support them in their role.
If you are a parent or carer of a child with a long-term chronic condition and would like to join the forum read the Terms of Reference. If you can’t join us at our face to face meetings you can join virtually (through our closed Facebook page). Please complete the expression of interest form and someone will contact you to discuss further.
For further information contact firstname.lastname@example.org