GenerationR is a National Network (GenerationR Alliance) of Young People’s Advisory Group’s (YPAGs) based across the UK.
Groups receive funding through a range of sources, including the National Institute for Health and Care Research (NIHR), NHS organisations, charities and other funders.
The main remit of YPAGs is to support the design and delivery of paediatric research in the UK.
GenerationR Alliance YPAGs are typically made up of 10–15 members aged between 8 and 19, creating a supportive and inclusive space where children and young people can share their perspectives. Most YPAGs meet every six weeks, with sessions scheduled at weekends, in the evenings, or during school holidays to maximise accessibility and flexibility for members.
Within these groups, children and young people work collaboratively with researchers to shape health research, offering insights that influence study design, delivery and dissemination. Their lived experiences and diverse viewpoints help ensure that research is relevant, meaningful and responsive to the needs of children and young people (CYP).
To find out what’s happening in your area and YPAG activities click on the map for further information. More groups will be added soon.
GenerationR Alliance YPAGs are a resource available to any health researcher (both academic and life science industries) who seek the input of children, young people and families in their research projects.
Being a National network with International links to YPAGs across Europe and Globally, we are able to provide feedback from a range of age groups from different socioeconomic and cultural backgrounds, as well as healthy and those that suffer with a chronic condition. This diversity allows YPAGs to make crucial changes to products and study design to ensure that the research is child-appropriate.
By engaging and involving children, young people (CYP) and families early on and throughout the research process, alongside educating CYP, families and members of the public about the importance of evidence based child health will ultimately lead to better recruitment and retention rates to paediatric research and give greater access to life-saving therapies for our future CYP.
To discuss opportunities to collaborate with GenerationR Alliance YPAGs, please email EATC4C-PPIE@liverpool.ac.uk
The GenerationR Alliance is co-ordinated by: Jenny Preston, Senior Patient and Public Involvement Manager, Experimental Arthritis Treatment Centre for Children (EATC4Children), University of Liverpool.
The GenerationR Alliance is supported by the Hugh Greenwood Legacy for Children’s Health Research Fund and the EATC4Children.
Email: EATC4C-PPIE@liverpool.ac.uk
