About

GenerationR is a National Network (GenerationR Alliance) of Young People’s Advisory Group’s (YPAGs) based across the UK.

Groups are funded by the National Institute for Health Research (NIHR) and/or other National Health Service organisations.

The main remit of YPAGs is to support the design and delivery of paediatric research in the UK.

The GenerationR website was created as part of the James Lind Initiative’s work on Testing Treatments interactive, supported by the NIHR.

What we do

GenerationR Alliance YPAGs are predominantly made up of 10-15 members who are aged between 8-19. Most YPAGs meet every six weeks either at weekends, in the evenings, or during school holidays and come together for a national meeting once a year.  Their views feed into the design and delivery of health research in children and young people (CYP).

What’s on

To find out what’s happening in your area and YPAG activities click on the map for further information.  More groups will be added soon.

 

Parents and Carers

We know the impact young people’s involvement can have on the design and delivery of paediatric health research.  But it is also important to listen to parent’s and carers views and opinions.

We want to involve parents and carer’s in learning about and designing health research.  The aim is to improve health care by improving the way we research it.

To find out more about how we are involving parents and carers click here

Information for Researchers

GenerationR Alliance YPAGs are a resource available to any health researcher (both academic and life science industries) who seek the input of children, young people and families in their research projects.

Being a National network with International links to YPAGs across Europe and Globally, we are able to provide feedback from a range of age groups from different socioeconomic and cultural backgrounds, as well as healthy and those that suffer with a chronic condition.  This diversity allows YPAGs to make crucial changes to products and study design to ensure that the research is child-appropriate.

By engaging and involving children, young people (CYP) and families early on and throughout the research process, alongside educating CYP, families and members of the public about the importance of evidence based child health will ultimately lead to better recruitment and retention rates to paediatric research and give greater access to life-saving therapies for our future CYP.

To discuss opportunities to collaborate with GenerationR Alliance YPAGs, please email info@generationr.org.uk

 

Resources on how to involve children and young people in health research

  • Guidance on how to involve young people in research design
  • Activities (ice-breakers, ideas for agendas, etc)
  • Online Toolkit on how to set up a Young Person’s Advisory Group

Resources on designing age-appropriate patient information sheets

Contacts

The GenerationR Alliance programme is co-ordinated by:

Jenny Preston, (Senior Patient and Public Involvement Manager, University of Liverpool).

Dr William van’t Hoff, (Clinical Director for Stakeholder Engagement, NIHR Clinical Research Network Coordinating Centre).

Dr Pamela Dicks, (Network Manager, ScotCRN).

Email: info@generationr.org.uk