By Vijay Tailor-Hamblin,
Some of us and some of the children and young people from the GOSH YPAG have done training that was organised with Jacq to learn about how to interview other children and young people. They told us about their experience, and Jacq will run more training workshops in the summer or autumn.
Jacq presented two versions of a poster that she will show at the Clinical Research Network conference. We preferred the version with less words and with more colour.
Jo came back to us with a project to make podcasts about visual experiences by people who have a sight impairment. We talked about how to make normal-sighted people feel and really understand the experience of not seeing something. Autonomous sensory meridian response is something we could use, like using sound and speakers instead of describing visual information in a podcast.
We worked really hard on finding a name for the school workshops that Annegret and her team are working on, which they will run in secondary schools to tell young people about eye and vision health and to encourage them to volunteer in the NHS. After several rounds of discussions, we came up with the name “visually”, and that will now be used.
Our May YPAGne meeting had a strong emphasis on technology. Dr Heather Lambert came to discuss the increasing problem of young adults forgetting to take their medication, due to changes in their lifestyle. Researchers have developed an Aparito app prototype to help children with Chronic Kidney Disease (CKD) remember to take their medication. They asked […]
Short animation exploring clinical research from the perspective of children.
This exercise develops knowledge of different types of research and related terminology. The task requires young people to match a phrase with its definition.
