About the group

YPAG KSS has been funded initially for one year by a local Sussex based charity called Rockinghorse.

We meet on Saturdays 10-12pm every 2 months at the Royal Alexandra Children’s Hospital in Brighton.

We have a membership list of about 25 C&YP aged 8 -18rs with average attendance at the Saturday meetings of about 12-15 C&YP.

We also run a parallel Parent & Carers group who meet in a separate room at the same time and provide input on the same projects presented to the C&YP.

Recent activities

Launch of the YPAG KSS in Nov. 2017 featured in NIHR PPI news.

Update on launch and January meeting:

INVOLVE Summer 2017 newsletter (as part of the RDSSE/INVOLVE Partnership event)

Article in the RDSSE Spring/Summer 2018 newsletter (pp6-7):

We have a poster which we are just updating in time for the Brighton Science Festival Oct 2018 – I can forward in due course.

The C&YP have developed a ‘Top Tips’ for researchers who come to present to the group – can be forwarded.

Meetings

*20th October as part of the Brighton Science Festival*

17th November 2018 – celebrating 1st year!

January 2019 (date tbc)

[photo, directions or contact details here]

Latest from YPAG Kent, Surrey & Sussex (KSS)

Discussing asthma genomic testing and a cytomegalovirus (CMV) vaccine

At the recent meeting of the Kent, Surrey & Sussex Young People’s Advisory Group  (YPAG) group on Saturday 20th June, the group heard a presentation about a project led by Dr. Tom Ruffles who is a respiratory consultant at the Royal Alexandra Children’s Hospital, part of University Hospitals Sussex NHS Foundation Trust. Tom also teaches […]

Sensations of toothbrushing / Invisible chronic health disabilities in education

At the recent meeting of the Kent, Surrey & Sussex Young People’s Advisory Group  (YPAG) group on Saturday 14th March, the  group heard a presentation about a project led by Dr. Diane Sellers from Sussex Community NHS Foundation Trust. Diane is an Advanced Clinical Practitioner Speech & Language Therapist and Research Fellow and is part […]

Little Platypus Initiative Project

The Kent, Surrey & Sussex Young People’s Advisory Group (YPAG) group met on Saturday 24th January in Brighton. They heard a presentation from  Patricia Velazquez-Ruta, a  Nurse Practitioner at East Kent Hospitals University NHS Foundation Trust and lead for the Little Platypus Initiative Project The initiative offers children and young people undergoing surgery the option […]