Earlier this month, five member of our eye-YPAG, a group facilitator and three parents attended the annual summit of the international Children’s Advisory Network (iCAN) summit. The meeting was hosted by the Teddy Network (European Network of Excellence for Paediatric Research) and took place in Bari, Italy, which was attended by 99 young people, […]
This was my first eye-YPAG meeting. I came as a supporting facilitator, because Vijay, the regular facilitator, has had a baby – CONGRATULATIONS VIJAY, from the whole YPAG group! It was a great meeting! – 15 children and young people aged 5 to 16 years attended, with the youngest two dipping in and out […]
This session was super busy as we had 5 researchers (more than usual) and although it was slightly rushed, I think I learnt lots of new information about research and eye conditions. The first study we heard about was Michael Crossland’s study, which was very interesting. He is trying to figure out if the amount […]
The meeting on the 20th of May was very enjoyable and productive. We started off with catching up with each other and then we had a brief of what the meeting itinerary is. We officially began by answering questions such as what have u been up to since we last met; many answers to that […]
In today’s session we had some new members join us, they were welcomed, and we had some of the original members of the group tell them what we do at YPAG. We started off with Vijay asking us questions and familiarising ourselves with what research is and how it can be beneficial to people. We […]
On Saturday 24th September 2022, the eye YPAG met in person for the first time since the end of 2019. I love meeting in person so much more than on Zoom – although we do have to get up a lot earlier to travel to London! It’s worth it though! It was great to catch […]
My name is Hannah and I’ve been a Great Ormond Street Hospital (GOSH) YPAG member for a year and a half now. My involvement so far has all been virtual until this summer when myself and another GOSH YPAG member had the opportunity to go on three days of work experience in a research laboratory […]
Hi my name is Walter and I was one of 6 YPAG members who took part in three evening training workshops on Qualitative Interview training in April and May 2022. Below is a Q&A where I tell you about our experiences. You can also listen to myself, Sarun, Niamh and Orla telling other YPAG members […]
Hey this is Ecem, one of the Your Rheum members. Laura and Janet (Your Rheum organisers), at a virtual Your Rheum meeting earlier in the year, talked about an opportunity to write a piece of work for a scientific journal called BioMed Central, or BMC for short. The paper was going to be about the […]
The Hertfordshire young people’s advisory group (Herts YPAG) are looking for new members who are 10-18 and live in Hertfordshire You don’t need any previous experience, just be interested in getting involved in research about children and young people’s health and care and the communities we live in, and be able to come to 7-8 meetings […]
