Audience Parents/carers

Here’s all of our material for parents and carers.

Creating a research Glossary with young people for young people

Creating a research glossary with young people for young people to help them understand research terms

Our first Parent and Carer Research Forum Meeting

Welcome to the first blog of the Alder Hey Clinical Research Facility, Parent and Carer Research Forum.

Our London YPAG meeting in May by Oceiah

On Saturday the 6th May we had another exciting and packed meeting

A London YPAG meeting: A brand new animation about the genome & more

Hi guys, Hope you are all well. We had another fabulous time at the YPAG meeting in March 2017, with some researchers from Great Ormond Street Hospital (GOSH) attending and discussing some of their new research ideas like LUCY. The LUCY study or project, is a mental health service for young people. The researchers asked us for […]

Myth Busters: Research in the hospital

Esme, Nicke and Freya explore research at Great Ormond Street Hospital for Children (GOSH).

Alexis writes about YPAG & what we do at meetings

Hi guys, My name is Alexis and I`m 9 years old.  Hope you’re well!  I`m part of a group called Young  Person’s Advisory Group at Great Ormond Street Hospital for Children. Yes, I know that the name is quite a mouthful, but that`s why we have a shortened version: YPAG. In YPAG we get to do a […]

How we can help Chief Investigators with their Paediatric studies?

There are many ways we’ve been helping Chief Investigators with their Studies in the West Midlands. From Development of Patient Information Sheets for the RAPID Study, you can watch our FILM HERE to show how we helped the Chief Investigator of this study. WE have also been helping with not only Patient Information Sheets and […]

Young people working with a Clinical Research Facility (NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital)

The West Midlands NIHR CNR West Midlands Young Person’s Steering Group have also been busy working with the NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital. This has been a successful collaboration alongside the Research and Development Department at Birmingham Children’s Hospital You can read about this collaboration below: An example of a […]

Young People acting as Patient Research Ambassadors at Birmingham Children’s Hospital

The West midlands Young Person’s Steering Group have been working hard with the Research and Development Department at Birmingham Children’s Hospital to become “Patient Research Ambassadors.” FILM:You can find out more about the Patient Research Ambassador Initiative and how Young people can be involved at your organisation by clicking here… Recently, one of the members […]

Representing Generation R at the International Children’s Advisory Network Event (iCAN) in Barcelona – July 2016

International Children’s Advisory Network (iCAN), Barcelona, June 2016 In June 2016, Claire Callens (NIHR CRN West Midlands Patient and Public Involvement Officer) attended the International Children’s Advisory Network (iCAN), 5 day Research and Advocacy Summit in Barcelona. Claire Callens who co-leads and facilitates the NIHR Clinical Research Network West Midlands, Young Persons’ Steering Group was […]