On Saturday 24th September 2022, the eye YPAG met in person for the first time since the end of 2019. I love meeting in person so much more than on Zoom – although we do have to get up a lot earlier to travel to London! It’s worth it though! It was great to catch […]
We had the amazing opportunity to send our young people on a trip to the iCAN conference (International Children’s Advisory Network meeting) hosted in Lyon France. The network brings together and supports young person advisory groups around the world to provide a voice for children and families in medicine, research, and innovation. Below we have […]
Some of us and some of the children and young people from the GOSH YPAG have done training that was organised with Jacq to learn about how to interview other children and young people. They told us about their experience, and Jacq will run more training workshops in the summer or autumn. Jacq presented two […]
Hi my name is Walter and I was one of 6 YPAG members who took part in three evening training workshops on Qualitative Interview training in April and May 2022. Below is a Q&A where I tell you about our experiences. You can also listen to myself, Sarun, Niamh and Orla telling other YPAG members […]
On Saturday April 23 we met one more time on Zoom – we so hope that our next meeting will be face-to-face again! It was great to see each other on screen at least. We talked about what everyone had been doing over the Spring holidays. Then Dr Thomas gave an update on project Oriel, […]
Thank you Eleri, and for all your wonderful contributions to eyeYPAG over the past year – Merry Christmas!
On Saturday 25th September 2021, in our YPAG meeting, we spent some time trying to help Mr Larkin and his team share the results of their KERALINK trial in a way people would understand. The KERALINK trial tested the ‘cross-linking’ treatment for Kerataconus, to try and stop the deterioration of sight in young people with […]
Update: we’ve published an academic journal article about our evaluation! You can read it here. eyeYPAG started in Spring 2019 so, after our first two years, we wanted to evaluate* the eyeYPAG so that we could learn from everyone involved what has been good about the group, what difference we have made and how we […]
We started off with a drawing challenge: draw something that represents what you like about eyeYPAG or what eyeYPAG means to you ????. Here are a few of our drawings: Some of us are working with Louca-Mai on an evaluation of our group. We’ve done surveys and focus groups to get the views of group […]
We started this eyeYPAG meeting with a scavenger hunt! Then Jacq showed us all the final version of our group shared agreements, with a new border designed by Niamh and Orla. You can see the video and read more about them here: https://generationr.org.uk/eyeypag_shared-agreements/. We agreed that we would play the video at the start of […]
