By KSS YPAG,
The Kent, Surrey & Sussex Young People’s Advisory Group (YPAG) group 
met on Saturday 22nd November at the Royal Alexandra Children’s Hospital in Brighton. They heard a presentation by Dr. Ian Male , a Consultant Paediatrician at SCFT, on a Neurodevelopment Pathway project. The project is proposing to look at which neurodevelopmental assessment pathways improve support, experience and outcomes for neurodivergent children and will involve a PPIE (Patient and Public Involvement and Engagement) group of young people.
The YPAG gave feedback on how the researchers can make best use of meetings with young people and enable their views to be heard and and on how the study might be designed to ask young service users about their experience of neurodevelopmental assessment. Dr. Ian said “it was so helpful to be able to talk ideas with the young people as to what our PPIE for young people group should look like and how we could run the PPIE ”.
The meeting also included a refresh and review activity looking at how research participant information is provided for children and young people. We thank all our members for their support and engagement in helping researchers and look forward to seeing everyone in the new year.
The first in-person YPAG meeting of the year took place on Saturday 9th March. This was the first YPAG meeting that I have attended, as I have just joined the group. The meeting started with a ‘two truths and one lie’ icebreaker which helped me get to know everyone????. After this, we had lunch – […]
A short 5 minute animation produced by the European Communication on Research Awareness Needs (ECRAN) project, describing the stages involved in clinical trials
This is a workshop on clinical research that can be run by teachers with young people as a learning exercise.
