Your Rheum was set up in October 2016 and is a group for people in the UK aged 11-24 years who have a diagnosed rheumatic condition. Your Rheum provides an easy way for young people to understand and get involved in rheumatology research that is relevant to them. For example understanding why certain medications have side effects or developing tools such as website to help young people manage their condition.
The aim of this group is to make sure that the research that happens about conditions such as JIA, Lupus, Fibromyalgia,or Scleroderma means something to the young people it affects, reflecting what’s important to them and not just what is important to the researchers. You can find the latest Your Rheum newsletter here.
You must be:
There are two main ways you can be involved:
The priority of the Group is for work funded through BANNAR or for researchers who are members of BANNAR. However, there may be capacity to work with researchers outside of BANNAR and so we encourage all researchers to get in touch with us to discuss their project further.
The Group can help you with all stages of your research project from generating research questions, inputting into grant application, through to evaluating the impact of your research. The work of the Group is classed as Public and Patient Involvement (PPI). Complete a researcher application form here.
Here are some of the activities we have been involved in;
Hello, how are you? In case you are wondering I am fine. School has been great; I shall inform you what has happened in the last YPAG session which was on July 6th 2019 Making a new video to explain Gene Therapy Linda Von Neree, (the old GOSH YPAG Lead, whom now works in patient […]