Your Rheum was set up in October 2016 and is a group for people in the UK aged 11-24 years who have a diagnosed rheumatic condition. Your Rheum provides an easy way for young people to understand and get involved in rheumatology research that is relevant to them. Check out the Your Rheum animation to understand what we do.
Here are some of the activities we have been involved in;
Esen, E., Gnanenthiran, S., Lunt, L. et al. The Your Rheum story: involvement of young people in rheumatology research. BMC Rheumatol 6, 43 (2022). https://doi.org/10.1186/s41927-022-00273-z: &
Shoop-Worrall SJW, Cresswell K, Bolger I, Dillon B, Hyrich KL, Geifman N; Members of the CLUSTER consortium. Nothing about us without us: involving patient collaborators for machine learning applications in rheumatology Ann Rheum Dis. 2021 Jul 5:annrheumdis-2021-220454 10.1136/annrheumdis-2021-220454
You must be:
There are three ways you can be involved:
The priority of the group is for work funded through BANNAR or for researchers who are members of BANNAR. However, there is capacity to work with researchers outside of BANNAR and so we encourage all researchers to get in touch with us to discuss their project further.
The Group can help you with all stages of your research project from generating research questions, inputting into grant application, through to evaluating the impact of your research. The work of the Group is classed as Public and Patient Involvement (PPI). Complete a researcher application form here.
Why did you want to take part in a mini career project? I wanted to take part in a mini career project because I knew what I wanted to be doing, but I just didn’t have the knowledge on how to get there or what the first steps to take were. What career/professional did you […]
Why did you want to take part in a mini career project? To gain an insight into my dream job and to find out first-hand what it entails. What career/professional did you want to speak to? A paramedic. What key things did you want to ask a paramedic & why? What do you do […]
Hey this is Ecem, one of the Your Rheum members. Laura and Janet (Your Rheum organisers), at a virtual Your Rheum meeting earlier in the year, talked about an opportunity to write a piece of work for a scientific journal called BioMed Central, or BMC for short. The paper was going to be about the […]