Our group is made up of 17 young people, age range 8-19 years old (although children and young people aged 8-21 are welcome!).
We meet at Great Ormond Street Hospital (GOSH) in London. Several of our members are current or former patients of GOSH, some are siblings, and some are the children of staff who work at GOSH. Some, but not all, have participated in research studies.
We are funded by the National Institute for Health Research (NIHR) Biomedical Research Centre at Great Ormond Street Hospital for Children NHS Foundation Trust and University College London.
Some of our members have written short biographies of themselves.
“My name is Leoni Morris and I am 17. I’ve been going to the group for about 18 months and I decided to join as my friend who was already going told me about what the group was and what it involved and I thought it seemed really interesting. I really enjoy coming and I like learning about different research projects. Being in the group makes you feel that you are involved in something important and it means you know you are helping people in the future.”
“My name is Bethany Rose, 17 years old. I’ve been with the group for 3 years. I really enjoy coming to meetings as we get to learn a lot and we are helping people. We also get feedback from the people we help and that encourages and motivates us to do more. I feel that we are involved in something really important and helpful.”
“My name is Freya Lynch and I am 17 years old. I’ve been part of the group for 8 years. I love being a member because I have so many opportunities to make an impact on future generations. I have spoken in conferences, event fairs, new projects, etc. Being a YPAG member has given me the chance to be a new person.”
“Hi! My name is Nicke Lynch and I am 9 years old and I have been part of the group for 5 months and my older sisters are part of the group too, I joined them because it sounded fun! At my first meeting I was very shy, but now I am more confident and it’s great fun. I want to learn more about medicine because I want to be a marine biologist.”
Hi, my name is Esme and I am 17 years old. I have been with the London YPAG for almost 7 years. YPAG is a fantastic opportunity for me and it has built my confidence and my knowledge of research and all kinds of disorders and illnesses. I have made good friends and enjoy every meeting. It is a great opportunity knowing that I am helping researchers.
“My name is Iona and I am 17 years old. My friend Leoni told me about the group. I find the group really interesting as I learn about health issues, etc. It makes me feel as if I might impact the future which feels very rewarding. And I really enjoy being a member of the group.”
“My name is Emma and I am 12 years old. The reason I joined this group was because my mum, who works in the hospital, recommended it to me and it turned out to be really fun! I like going to YPAG meetings because I like helping people and making new friends.”
“My name is Oceiah and I’m 13 years old. The reason why I joined YPAG was because I love Science immensely! I have good ideas which will help the Researchers with all their projects in the future. I hope this will help make life better for all the children that come to GOSH.
Furthermore I like making new friends. My dream job is to be a scientist. I hope that we will be able to visit the Crick Science Institute with YPAG soon.”
“My name is Alexis and I am 8 years old. I have just joined the YPAG. I joined the group because my mum is a scientist and it really encouraged me to learn more about science. It is a good group I have learnt a lot more than before.”
‘Thank you to the group and you for letting me come along. For me personally it was a great experience. I have taken the feedback to the researchers and they are going to redo the forms and submit to ethics.’
‘Thank you for a most wonderful session with the MCRN CYP at GOSH yesterday. Could you please let the group know that they were not only helpful, but also inspiring. We will definitely incorporate their suggestions into our revisions of the information leaflets, and their comments into in the rationale for our approach to involving cyp in the project and I dare say others as well.’
‘Thank you for inviting me to come to the YPAG meeting… I’ve just read through all of the really useful feedback from the group and made some helpful changes to my info sheets. They’re a great group – all very thorough and had some really good suggestions to make!’
The London YPAG is going through a temporary transition with the facilitator. Please contact firstname.lastname@example.org for support.
Biomedical Research Centre at Great Ormond Street Hospital and University College London.
On Saturday the 6th May we had another exciting and packed meeting. Two researchers from the Institute of Child Health showed us a video about illnesses which involved two teens talking about their hospital visits. The researchers asked YPAG’s ideas how to improve information for young people when they transition from child to adult health. […]
Hi guys, Hope you are all well. We had another fabulous time at the YPAG meeting in March 2017, with some researchers from Great Ormond Street Hospital (GOSH) attending and discussing some of their new research ideas like LUCY. The LUCY study or project, is a mental health service for young people. The researchers asked us for […]
Esme, Nicke and Freya explore research at Great Ormond Street Hospital for Children (GOSH). They talk to – patients Lottie and Ashley about what it is like to take part in research, – research nurses Amy and Kate about their job and – GOSH’s Chief Executive Officer (CEO) Peter Steer about why research is […]