By Development Officer,
The Nuffield Council on Bioethics recently published its report – ‘Involving children and young people in health research – getting it right’. One of the recommendations in the report is: “People who choose what research studies to fund must make sure that children, young people and parents are involved in these choices.”
YPAGs can’t make any input to decisions about what research is funded. The decisions have already been made by others before studies come to YPAGs for their input.
What should members of YPAGs do to make sure they are involved in choices about what research is funded, as recommended by the Nuffield Council?
A big thank you to GOSH YPAG member Teo who hosted @ GreatOrmondSt Twitter account, to give visitors the inside scoop of the day’s activites at this year’s NIHR GOSH BRC Family Fun Day for research on 26 October 2019. Teo is a dedicated YPAG member and has been involved in lots of other activities to represent […]
In this video from the inaugural Generation R meeting in 2013, YPAG members lead a discussion of why medical research is important.
These scenarios have been developed and tested by Generation R YPAGs.
