YPAG Eye-YPAG

eye-YPAG at iCAN, Bari, Italy 2024

  Earlier this month, five member of our eye-YPAG, a group facilitator and three parents attended the annual summit of the international Children’s Advisory Network (iCAN) summit. The meeting was hosted by the Teddy Network (European Network of Excellence for Paediatric Research) and took place in Bari, Italy, which was attended by 99 young people, […]

Eye-YPAG meeting 06 July 2024 – by Hamza Noor

This was my first eye-YPAG meeting. I came as a supporting facilitator, because Vijay, the regular facilitator, has had a baby – CONGRATULATIONS VIJAY, from the whole YPAG group!   It was a great meeting!  – 15 children and young people aged 5 to 16 years attended, with the youngest two dipping in and out […]

New year, new projects – by Elise and Ethan.

On Saturday 27th January we had a YPAG session, our first of 2024 We started off our YPAG session with an ice breaker. Vijay asked us, “if we could teach one topic, what would we teach?” Everyone gave their answers as well as their name and age. Topics ranged from cooking to indoor climbing and […]

Research, research, research – lots of new ideas – By Orla

This session was super busy as we had 5 researchers (more than usual) and although it was slightly rushed, I think I learnt lots of new information about research and eye conditions. The first study we heard about was Michael Crossland’s study, which was very interesting.  He is trying to figure out if the amount […]

The research cycle and new projects by Muminah

Today was my first meetup with the Young People’s Advisory Group for eye research, it was the best time. I got to relate to kids my age, the group made me feel welcome, this allowed me to feel confident when I was speaking. The topics we discussed will have an impact on the future and […]

eyeYPAG go to San Diego for iCAN – July 2023 – by Orla and Niamh

Here’s what Orla had to say: The iCAN summit this year was super fun and I think they have lived up to the fact that they try to improve the summit every year and I’m excited to see how it gets better in the years to come. At the summit, one thing I really enjoyed […]

Apps for School and Patches – by Eleri

The meeting on the 20th of May was very enjoyable and productive. We started off with catching up with each other and then we had a brief of what the meeting itinerary is. We officially began by answering questions such as what have u been up to since we last met; many answers to that […]

New members, Patches and Quality of life – by Ethan

In today’s session we had some new members join us, they were welcomed, and we had some of the original members of the group tell them what we do at YPAG. We started off with Vijay asking us questions and familiarising ourselves with what research is and how it can be beneficial to people. We […]

Red light, Patches and eyeball crafts – 24th September – by Niamh Linehan

On Saturday 24th September 2022, the eye YPAG met in person for the first time since the end of 2019.  I love meeting in person so  much more than on Zoom – although we do have to get up a lot earlier to travel to London!  It’s worth it though!  It was great to catch […]

The eye-YPAG visit France! iCAN conference – Various authors

We had the amazing opportunity to send our young people on a trip to the iCAN conference (International Children’s Advisory Network meeting) hosted in Lyon France. The network brings together and supports young person advisory groups around the world to provide a voice for children and families in medicine, research, and innovation. Below we have […]