Audience: 8-12

Jenga, Pizza and a tour! by Orla

  At the most recent eyeYPAG meeting, we worked together on various themes. I really enjoyed this session because we did lots of interactive activities like designing a logo for a new research study on myopia in children called COSMYC, which we have heard about in the past.  It was nice to get some updates […]

The Child CPR Study

At the YPAG KSS meeting in September held at the Royal Alex Children’s Hospital in Brighton, the group heard from Freya, a researcher from King’s College London, and Izzie, a Paramedic, about a study called ‘The Child CPR Study’ which aims to generate new knowledge about the experiences and needs of children and young people […]

eye-YPAG at iCAN, Bari, Italy 2024

  Earlier this month, five member of our eye-YPAG, a group facilitator and three parents attended the annual summit of the international Children’s Advisory Network (iCAN) summit. The meeting was hosted by the Teddy Network (European Network of Excellence for Paediatric Research) and took place in Bari, Italy, which was attended by 99 young people, […]

Eye-YPAG meeting 06 July 2024 – by Hamza Noor

This was my first eye-YPAG meeting. I came as a supporting facilitator, because Vijay, the regular facilitator, has had a baby – CONGRATULATIONS VIJAY, from the whole YPAG group!   It was a great meeting!  – 15 children and young people aged 5 to 16 years attended, with the youngest two dipping in and out […]

New year, new projects – by Elise and Ethan.

On Saturday 27th January we had a YPAG session, our first of 2024 We started off our YPAG session with an ice breaker. Vijay asked us, “if we could teach one topic, what would we teach?” Everyone gave their answers as well as their name and age. Topics ranged from cooking to indoor climbing and […]

Research, research, research – lots of new ideas – By Orla

This session was super busy as we had 5 researchers (more than usual) and although it was slightly rushed, I think I learnt lots of new information about research and eye conditions. The first study we heard about was Michael Crossland’s study, which was very interesting.  He is trying to figure out if the amount […]

The research cycle and new projects by Muminah

Today was my first meetup with the Young People’s Advisory Group for eye research, it was the best time. I got to relate to kids my age, the group made me feel welcome, this allowed me to feel confident when I was speaking. The topics we discussed will have an impact on the future and […]

eyeYPAG go to San Diego for iCAN – July 2023 – by Orla and Niamh

Here’s what Orla had to say: The iCAN summit this year was super fun and I think they have lived up to the fact that they try to improve the summit every year and I’m excited to see how it gets better in the years to come. At the summit, one thing I really enjoyed […]

Apps for School and Patches – by Eleri

The meeting on the 20th of May was very enjoyable and productive. We started off with catching up with each other and then we had a brief of what the meeting itinerary is. We officially began by answering questions such as what have u been up to since we last met; many answers to that […]

New members, Patches and Quality of life – by Ethan

In today’s session we had some new members join us, they were welcomed, and we had some of the original members of the group tell them what we do at YPAG. We started off with Vijay asking us questions and familiarising ourselves with what research is and how it can be beneficial to people. We […]

Your Rheum Mini Careers: Zahra’s Project

Why did you want to take part in a mini career project? I wanted to take part in a mini career project because I knew what I wanted to be doing, but I just didn’t have the knowledge on how to get there or what the first steps to take were. What career/professional did you […]

Your Rheum Mini Careers: Ecem’s project

  Why did you want to take part in a mini career project? To gain an insight into my dream job and to find out first-hand what it entails. What career/professional did you want to speak to? A paramedic. What key things did you want to ask a paramedic & why? What do you do […]

Red light, Patches and eyeball crafts – 24th September – by Niamh Linehan

On Saturday 24th September 2022, the eye YPAG met in person for the first time since the end of 2019.  I love meeting in person so  much more than on Zoom – although we do have to get up a lot earlier to travel to London!  It’s worth it though!  It was great to catch […]

eyeYPAG and GOSH YPAG train together to be Young Interview Assistants

Hi my name is Walter and I was one of 6 YPAG members who took part in three evening training workshops on Qualitative Interview training in April and May 2022. Below is a Q&A where I tell you about our experiences. You can also listen to myself, Sarun, Niamh and Orla telling other YPAG members […]

HOW I BECAME A PUBLISHED AUTHOR

Hey this is Ecem, one of the Your Rheum members. Laura and Janet (Your Rheum organisers), at a virtual Your Rheum meeting earlier in the year, talked about an opportunity to write a piece of work for a scientific journal called BioMed Central, or BMC for short. The paper was going to be about the […]

Raising Awareness of Antibiotic Resistance with children and young people – part 2

Blog by Jenny Preston In 2019 I reported on an engagement project that was co-designed by children and young people to explore one of the greatest global public health threats of our time, antibiotic resistance.  The project forms part of the dissemination activities of a NIHR HTA-funded study called BATCH (Biomarker-guided duration of antibiotic treatment […]

Herts YPAG is looking for new members

The Hertfordshire young people’s advisory group (Herts YPAG) are looking for new members who are 10-18 and live in Hertfordshire You don’t need any previous experience, just be interested in getting involved in research about children and young people’s health and care and the communities we live in, and be able to come to 7-8 meetings […]

GOSH YPAG and the ChromaDose Project

GOSH YPAG and Chromadose   We are excited to be involved in a ground-breaking project to personalise childhood cancer treatment. The ChromaDose  technology will be able to calculate each patients’ drug exposure within a drop of their own blood. This will mean, the amount of cancer drugs the patient has can be adjusted to suit […]

Back to school – who asked the students?

Read about Freya’s research project about young people’s views on returning to school during the pandemic.

Making a difference to children’s health research

Hear from Daisy about the impact young people are having on the design of children’s health research.

YEAH project – co-creating health research education with young people

Youngsters EngAgement in Health (YEAH) project officially launched.

Health Tech Workshop Event Report

Hot off the press! Read our report – Young people shaping healthcare technology research

GOSH YPAG member Sandra provides voiceover for GOSH Sample Bank animation

  Sandra has given great support to the communications team not only by recording the voice over for the Sample Bank animation but also by taking part in a Q&A to help engage with patients to get involved. Learn more about GOSH Sample Bank Read Sandra’s interview below: What do you personally think of the impact […]

GOSH YPAG member Teo takes over twitter at the NIHR GOSH BRC Family Fun Day for research 2019

A big thank you to GOSH YPAG member Teo who hosted @ GreatOrmondSt Twitter account, to give  visitors the inside scoop of the day’s activites at this year’s NIHR GOSH BRC Family Fun Day for research on 26 October 2019. Teo is a dedicated YPAG member and has been involved in lots of other activities to represent […]

Raising Awareness of Antibiotic Resistance with children and young people

What is Antibiotic Resistance? – a young person led drama and arts project for children and young people

London YPAG July 2019 update by Alexis

Hello, how are you? In case you are wondering I am fine. School has been great; I shall inform you what has happened in the last YPAG session which was on July 6th 2019 Making a new video to explain Gene Therapy Linda Von Neree, (the old GOSH YPAG Lead, whom now works in patient […]

Highly Commended accolade for YPAG KSS at regional awards ceremony

In February 2019, NHS Trusts, researchers and patients across the Kent, Surrey and Sussex region came together to celebrate the excellent health and social care research taking place across the NIHR Clinical Research Network. The awards were presented by Sine Littlewood, head of NIHR CRN business development and marketing, Dr Kate Jones, KSS CRN chief […]

New Head of Patient and Public Involvement for Research in Nottingham

Kate Frost is the new Head of Patient and Public Involvement and Engagement (PPI&E) for the Nottingham Bio-medical Research Centre, Clinical Research Facility and Research and Innovation

First Year Celebration for Kent, Surrey and Sussex

Celebrating a year since the inaugural session of our YPAG in November 2017, the greatest number of young people ever attended the meeting – 20 – including five new young people. Welcome!

London YPAG- November 2018 update by Alexis

Hello everyone I hope you have had a happy Christmas, here is my blog from the last YPAG Meeting. ‘Research on a new blood test to help diagnose sepsis and serious infections in paediatric emergency departments’ At the last YPAG, we had in attendance researchers from Great North Children’s Hospital. They said: Doctors don’t always […]

Kent, Surrey and Sussex YPAG meeting on 15 September 2018

14 young people turned up after the summer break, including Malak who, having turned 8 years old a couple of days earlier, was able to join her older brothers Mustafa and Marwan. Professor Paul Seddon welcomed the young people and the Parents and Carers and reminded everyone of the way in which YPAG operates (ground […]

Creating a research Glossary with young people for young people

Creating a research glossary with young people for young people to help them understand research terms

Our London YPAG meeting in May by Oceiah

On Saturday the 6th May we had another exciting and packed meeting

A London YPAG meeting: A brand new animation about the genome & more

Hi guys, Hope you are all well. We had another fabulous time at the YPAG meeting in March 2017, with some researchers from Great Ormond Street Hospital (GOSH) attending and discussing some of their new research ideas like LUCY. The LUCY study or project, is a mental health service for young people. The researchers asked us for […]

Alexis writes about YPAG & what we do at meetings

Hi guys, My name is Alexis and I`m 9 years old.  Hope you’re well!  I`m part of a group called Young  Person’s Advisory Group at Great Ormond Street Hospital for Children. Yes, I know that the name is quite a mouthful, but that`s why we have a shortened version: YPAG. In YPAG we get to do a […]

Nottingham YPAG Meeting – Saturday 13th August 2016

Nottingham YPAG Meeting written by Beth, aged 12

Young people working with a Clinical Research Facility (NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital)

The West Midlands NIHR CNR West Midlands Young Person’s Steering Group have also been busy working with the NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital. This has been a successful collaboration alongside the Research and Development Department at Birmingham Children’s Hospital You can read about this collaboration below: An example of a […]

Young People acting as Patient Research Ambassadors at Birmingham Children’s Hospital

The West midlands Young Person’s Steering Group have been working hard with the Research and Development Department at Birmingham Children’s Hospital to become “Patient Research Ambassadors.” FILM:You can find out more about the Patient Research Ambassador Initiative and how Young people can be involved at your organisation by clicking here… Recently, one of the members […]

Representing Generation R at the International Children’s Advisory Network Event (iCAN) in Barcelona – July 2016

International Children’s Advisory Network (iCAN), Barcelona, June 2016 In June 2016, Claire Callens (NIHR CRN West Midlands Patient and Public Involvement Officer) attended the International Children’s Advisory Network (iCAN), 5 day Research and Advocacy Summit in Barcelona. Claire Callens who co-leads and facilitates the NIHR Clinical Research Network West Midlands, Young Persons’ Steering Group was […]

Helping To Raise Awareness about Research into Children and Young People’s Mental Health

Shout Out For Youth Mental Health Mia, a member of the Network’s Young Persons’ Steering Group writes: On Tuesday 7 June, five of us from the Group were lucky enough to attend the ‘Shout Out For Youth Mental Health’ conference day in Birmingham. There were many inspirational speakers that we heard from, who had come […]

100,000 Genomes Project

Keith Wilson, Patient Research Ambassador visits the Liverpool YPAG to talk about the 100,000 Genomes Project

Attending a YPAG meeting by Ryan, Nottm YPAG member & Dr Luca Marciani

A young person’s and researcher’s perspective on attending a YPAG meeting in Nottingham.

My second Nottingham YPAG meeting – Arts + Crafts session

A blog focusing on the last two Nottingham YPAG meetings written by Anmol, aged 17 who recently joined the group.

Nottingham YPAG meeting ‘Innovation Challenge’

Nottingham YPAG meeting ‘Innovation Challenge’ by Olivia

A day in the life of a YPAG group by Rachael and Lottie

A summary of what two of Bristol YPAG’s members REALLY think of your research proposals

International Children’s Advisory Network (iCAN)

YPAG members Katherine and Sarah report from the iCAN summit.

Summer Scientist Week at The University of Nottingham

Two Nottingham YPAG members explain about their recent trip to the The University of Nottingham, Summer Scientist Week.

Generation R Editorial Board meeting in Oxford

Report from a recent meeting attended by Nottingham YPAG member Scarlet Jordan

How should YPAGs members get a say in research funding?

Nuffield Council on Bioethics report

A trip to Oslo!

Report of our trip to Oslo to help improve the usability of a questionnaire