Audience: 12-15

GOSH YPAG member Sandra provides voiceover for GOSH Sample Bank animation

  Sandra has given great support to the communications team not only by recording the voice over for the Sample Bank animation but also by taking part in a Q&A to help engage with patients to get involved. Learn more about GOSH Sample Bank Read Sandra’s interview below: What do you personally think of the impact […]

GOSH YPAG member Teo takes over twitter at the NIHR GOSH BRC Family Fun Day for research 2019

A big thank you to GOSH YPAG member Teo who hosted @ GreatOrmondSt Twitter account, to give  visitors the inside scoop of the day’s activites at this year’s NIHR GOSH BRC Family Fun Day for research on 26 October 2019. Teo is a dedicated YPAG member and has been involved in lots of other activities to represent […]

London YPAG July 2019 update by Alexis

Hello, how are you? In case you are wondering I am fine. School has been great; I shall inform you what has happened in the last YPAG session which was on July 6th 2019 Making a new video to explain Gene Therapy Linda Von Neree, (the old GOSH YPAG Lead, whom now works in patient […]

YPAGne Meeting May 2019

Our May YPAGne meeting had a strong emphasis on technology. Dr Heather Lambert came to discuss the increasing problem of young adults forgetting to take their medication, due to changes in their lifestyle. Researchers have developed an Aparito app prototype to help children with Chronic Kidney Disease (CKD) remember to take their medication. They asked […]

Highly Commended accolade for YPAG KSS at regional awards ceremony

In February 2019, NHS Trusts, researchers and patients across the Kent, Surrey and Sussex region came together to celebrate the excellent health and social care research taking place across the NIHR Clinical Research Network. The awards were presented by Sine Littlewood, head of NIHR CRN business development and marketing, Dr Kate Jones, KSS CRN chief […]

New Head of Patient and Public Involvement for Research in Nottingham

Kate Frost is the new Head of Patient and Public Involvement and Engagement (PPI&E) for the Nottingham Bio-medical Research Centre, Clinical Research Facility and Research and Innovation

First Year Celebration for Kent, Surrey and Sussex

Celebrating a year since the inaugural session of our YPAG in November 2017, the greatest number of young people ever attended the meeting – 20 – including five new young people. Welcome!

London YPAG- November 2018 update by Alexis

Hello everyone I hope you have had a happy Christmas, here is my blog from the last YPAG Meeting. ‘Research on a new blood test to help diagnose sepsis and serious infections in paediatric emergency departments’ At the last YPAG, we had in attendance researchers from Great North Children’s Hospital. They said: Doctors don’t always […]

Kent, Surrey and Sussex YPAG meeting on 15 September 2018

14 young people turned up after the summer break, including Malak who, having turned 8 years old a couple of days earlier, was able to join her older brothers Mustafa and Marwan. Professor Paul Seddon welcomed the young people and the Parents and Carers and reminded everyone of the way in which YPAG operates (ground […]

Creating a research Glossary with young people for young people

Creating a research glossary with young people for young people to help them understand research terms

Our London YPAG meeting in May by Oceiah

On Saturday the 6th May we had another exciting and packed meeting

A London YPAG meeting: A brand new animation about the genome & more

Hi guys, Hope you are all well. We had another fabulous time at the YPAG meeting in March 2017, with some researchers from Great Ormond Street Hospital (GOSH) attending and discussing some of their new research ideas like LUCY. The LUCY study or project, is a mental health service for young people. The researchers asked us for […]

Alexis writes about YPAG & what we do at meetings

Hi guys, My name is Alexis and I`m 9 years old.  Hope you’re well!  I`m part of a group called Young  Person’s Advisory Group at Great Ormond Street Hospital for Children. Yes, I know that the name is quite a mouthful, but that`s why we have a shortened version: YPAG. In YPAG we get to do a […]

Nottingham YPAG Meeting – Saturday 13th August 2016

Nottingham YPAG Meeting written by Beth, aged 12

How we can help Chief Investigators with their Paediatric studies?

There are many ways we’ve been helping Chief Investigators with their Studies in the West Midlands. From Development of Patient Information Sheets for the RAPID Study, you can watch our FILM HERE to show how we helped the Chief Investigator of this study. WE have also been helping with not only Patient Information Sheets and […]

Young people working with a Clinical Research Facility (NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital)

The West Midlands NIHR CNR West Midlands Young Person’s Steering Group have also been busy working with the NIHR Wellcome Trust Clinical Research Facility at Birmingham Children’s Hospital. This has been a successful collaboration alongside the Research and Development Department at Birmingham Children’s Hospital You can read about this collaboration below: An example of a […]

Young People acting as Patient Research Ambassadors at Birmingham Children’s Hospital

The West midlands Young Person’s Steering Group have been working hard with the Research and Development Department at Birmingham Children’s Hospital to become “Patient Research Ambassadors.” FILM:You can find out more about the Patient Research Ambassador Initiative and how Young people can be involved at your organisation by clicking here… Recently, one of the members […]

Representing Generation R at the International Children’s Advisory Network Event (iCAN) in Barcelona – July 2016

International Children’s Advisory Network (iCAN), Barcelona, June 2016 In June 2016, Claire Callens (NIHR CRN West Midlands Patient and Public Involvement Officer) attended the International Children’s Advisory Network (iCAN), 5 day Research and Advocacy Summit in Barcelona. Claire Callens who co-leads and facilitates the NIHR Clinical Research Network West Midlands, Young Persons’ Steering Group was […]

Helping To Raise Awareness about Research into Children and Young People’s Mental Health

Shout Out For Youth Mental Health Mia, a member of the Network’s Young Persons’ Steering Group writes: On Tuesday 7 June, five of us from the Group were lucky enough to attend the ‘Shout Out For Youth Mental Health’ conference day in Birmingham. There were many inspirational speakers that we heard from, who had come […]

100,000 Genomes Project

Keith Wilson, Patient Research Ambassador visits the Liverpool YPAG to talk about the 100,000 Genomes Project

Research and Me!

Juvenile Dermatomyositis (JDM) patient, talking about a patient’s perspective on research, the benefits of involving young people in research and how we can get more patients involved in the future.

Attending a YPAG meeting by Ryan, Nottm YPAG member & Dr Luca Marciani

A young person’s and researcher’s perspective on attending a YPAG meeting in Nottingham.

My second Nottingham YPAG meeting – Arts + Crafts session

A blog focusing on the last two Nottingham YPAG meetings written by Anmol, aged 17 who recently joined the group.

Nottingham YPAG meeting ‘Innovation Challenge’

Nottingham YPAG meeting ‘Innovation Challenge’ by Olivia

A day in the life of a YPAG group by Rachael and Lottie

A summary of what two of Bristol YPAG’s members REALLY think of your research proposals

International Children’s Advisory Network (iCAN)

YPAG members Katherine and Sarah report from the iCAN summit.

Generation R Editorial Board meeting in Oxford

Report from a recent meeting attended by Nottingham YPAG member Scarlet Jordan

How should YPAGs members get a say in research funding?

Nuffield Council on Bioethics report

A trip to Oslo!

Report of our trip to Oslo to help improve the usability of a questionnaire

Consultation on an RCT on Vitamin D and Insulin

This is a summary of a consultation by NIHR Clinical Research Network: Children.

What are young people’s views about Clinical Trials?

This is a summary of a study carried out for young people aged 13 and 14 years old involving the West Midlands YPAG.

Young people’s views on developing a paediatric hand and upper limb outcome measure

This is a summary of a survey of young people to find out about ways of measuring hand and arm movements.