GenerationR Alliance

Building on the success of the first GenerationR meeting in September 2013, a meeting on 31st October 2015 brought together people and organisations with an interest in young people’s involvement in health research. The purpose of the meeting was to highlight progress with the eleven recommendations set out in the GenerationR report, and to discuss what needed to be done to ensure young people’s involvement in the design and delivery of health research, which remains a key priority in the UK.

Over 30 delegates, including young people and representatives of the National Institute for Health Research (NIHR), charities, the Nuffield Council on Bioethics, the Royal College of Paediatrics and Child Health, the James Lind Initiative, industry, and the Health Research Authority shared their experiences and discussed both challenges and priorities for future work. To find out more about the day, read the following blog entitled: Involving children in research: GenerationR grows up, by Kate Harvey.  For a full report of the meeting click here.


A summary of the day included an overwhelming consensus on the need for:

  • Interested groups to collaborate,
  • National oversight of children and young people’s (CYP) involvement
  • Adequate resources to support CYP involvement in health research

GenerationR Alliance is born!

Delegates agreed to name such collaboration the ‘GenerationR Alliance’ and suggested it be responsible for developing an engagement strategy to support, signpost and promote collaboration.

Anyone with an interest in promoting and working with children, young people and families in health research can join the Alliance.  For further information about what this will entail read the following Terms of Reference.


Register your interest

Please use this form to contact us if you are interested in joining the Alliance.

  • The name of the individual or organisation that is interested in joining the Alliance
  • The name of the contact person of the organisation.
  • Please describe briefly how you would like to contribute to the GenerationR Alliance.
  • How do you involve children, young people and parents in your work? Please describe.
  • Do you involve parents and carers in your work? If so, please describe how.
  • Do you use social media? (facebook groups, Twitter etc.) Please list any relevant links to your social media accounts.
  • This field is for validation purposes and should be left unchanged.

By submitting this form, you consent for your details to be used for the purpose of the GenerationR Alliance.