About

Generation R is a National Young Persons’ Advisory Group made up of local groups across the UK.

Groups are funded by the National Institute for Health Research and/or other National Health Service organisations, through various channels.

We support the design and delivery of paediatric research in the UK.

The GenerationR website has been created as part of the James Lind Initiative’s work on Testing Treatments interactive, supported by the National Institute for Health Research.

What we do

YPAG now consists of five regional groups based in Liverpool, Birmingham, London, Bristol and Nottingham, plus one topic-focused group looking at Mental Health based in London.

They are all made up of 10-15 members who are aged between 8-19. The groups meet every six weeks either at weekends, in the evenings, or during school holidays and come together for a national meeting once a year.  Their views feed into the design and delivery of research in children.

What’s on

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Each YPAG meets regularly, usually every six weeks or so.  Please contact each group to find out more: Birmingham, Bristol, Liverpool, London, Nottingham and Mental Health

“Generation R” was launched at an event conceived and planned by the young people who attend our YPAGs.  Click the image above to watch videos from this event.

Watch this space for announcements of upcoming events in future.

Parents and Carers

Generation R is supported by local NHS Trusts and the National Institute for Health Research.

We want to involve young people in learning about and designing health research.  The aim is to improve health care by improving the way we research it.

The Generation R YPAGs have already had a subtantial impact on the quality of research.  Check out our blog to find out more.

Our Toolkit has been developed by parents for parents to help with their work on a Clinical Studies Group.

Read our 2013 report to the Department of Health on involving young people in health research.

Information for Researchers

Why involve young people and families?
Doing research that is relevant, reliable and fits the needs of young people.

How to involve young people and families
How to access existing groups, how to set up your own group and how to link it to Generation R.

 

Resources to help you involve young people:

Contacts

The Generation R programme is co-ordinated by Jenny Preston, Patient and Public Involvement Manager

Post, email, phone

Find out more about the individual YPAGs:  Birmingham, Bristol, Liverpool, London, Nottingham and the Mental Health YPAG (based in London)